A man who is suffering from a one in two million genetic disorder that is slowly turning his muscles into bone has opened up about the stark realities of his condition – detailing his struggle to find love, while coming to terms with the harsh realization that he will never be able to fulfill his lifelong dream of traveling the world.
Joe Sooch, 29, from Kips Bay, New York, has fibrodysplasia ossificans progressiva (FOP), also known as ‘Stone Man Syndrome,’