In 2016, his life completely changed. One day, Claudia wakes up with lumps in her private parts. If nothing shocks her at first, she decides to consult her general practitioner when they grow and cause her pain. His doctor is not worried and diagnoses him with boils. But as the days pass, the situation gets worse, so much so that new lumps appear on the rest of his body. Then begins an obstacle course to put a word on his symptoms: Verneuil.
“It was a total medical wandering. I consulted every possible practitioner, but no one believed me. I even went to see practitioners who had absolutely nothing to do with Verneuil’s disease, because I didn’t know who to consult or what to do. » Finally, it was a dermatologist who made the diagnosis. “The meeting lasted an hour. I had printed a document I found on the Internet, and that’s what saved me. »
“It’s an invisible handicap”
At 29, Claudia must now learn to live with this genetic disease. The symptoms of Verneuil disease vary in intensity and location. “I can have huge or very small abscesses, all over my body. » The pain is sometimes so intense that she can no longer walk or work: “It’s an invisible handicap. »
Between phases of remission and attacks, the young woman is often covered with bandages, on the face, arms, back or thighs: “At the moment, it has been three weeks since I had a flare-up, but that can return at any time. Everything that happens in your life can influence the disease. »
Do prevention on networks
By finding out more, Claudia realizes that she is not the only one suffering from this disease. But on the networks, she finds very little information. “Verneuil disease is not well known or recognized enough. I decided to fight on the networks to raise awareness and help other people. » This approach is not without difficulty. “You have to show your body, the abscesses, the nodules. My account has often been threatened with closure because I tell the truth about the disease. »
Claudia fights for this disease to be better understood and recognized. “This is my fight until the end. I will see it through to the end for myself and for all those who suffer from Verneuil’s disease. »