Parents of toddlers battling cystic fibrosis have today told how they fear their kids will be denied a ‘miracle’ drug on the NHS, with one mother terrified that it may be cruelly ‘snatched away’ from her 19-month-old daughter.
Kaftrio was this week approved for all children aged two and above, giving hope to hundreds of families affected by the incurable disorder.
Studies have shown it can extend the life-expectancy of sufferers by 30 years.
Yet, despite its life-changing benefits, NHS
